Introduction to Treatments

As previously mentioned I have no medical training and I’m not suggesting people go out and try these treatments – anything included here is done as part of my own research and to inform about possibilities.

Also, as the ME Association puts it: “there is as yet no accepted known cure, and no accepted universal treatment“. Which means that while people do get better, the professionals aren’t sure why. Sometimes it’s for no clear reason, sometimes the patient claims it’s due to some treatment plan they’re following, however there simply isn’t enough conclusive data, although there are many trials going on at present.

Note: I was told by my consultant that ME/CFS is one of those conditions doctors don’t like to say is cured, but rather that the condition is in remission. (She might have used a different word, but it’s that sort of meaning) Because once you have it it will always be there inside you, and periods of strain could potentially trigger a flare-up. I don’t know if that’s true for all people with the condition or it’s just if you get it in childhood or what, but I think it’s something to be aware of.

During my research I’ve also found that if the word ‘cured’ is used, you want to look carefully to see if you can find its exact meaning. The results of one study I read about described a portion of cases as cured, and then later I realised these people weren’t able to have a job and still spent long periods restricted to the house. That seems strange to me, and it’s something you want to watch out for.

 

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